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TOPIC: CRPS slowly taking my life, can Kratom help with memory?

CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7145

  • guitarguy
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Hi all, CRPS has taken my life. I feel more hopeless all the time.
Sorry, sometimes there is nobody to talk to and I feel isolated and alone.

My wife I know is going to end up leaving me. She said she can no longer communicate with me as I seem stupid, can't remember anything, don't follow through on things.

CRPS/RSD effects the limbic system which includes cognitive function and memory, especially short term memory. I will forget conversations with people a day later. I know I have had more trouble holding conversations in the last 8 years since this started, have trouble finding words, blank out, and other weird cognitive issues.

She also as a result is no longer attracted to me, no more feelings for me and thinks it will be over soon.

I would have to leave and go live with my parents till something changes or I die. I can no longer live this way. My life is slowly being stolen from me.

I read this is common that people with chronic disease often lose their spouses because they can't deal with the new changed person or falls out of love with the person after changes. Basically, I guess if I had cancer she would also leave me.

I am just getting so sick of people making me feel like I did this or am doing this to myself. I feel like I am to blame and have this huge burden of guilt over me. It is not fair. I never asked for this.

I could never so that to someone. I could never abandon someone I love.

One thing that is odd is that it seems I have stayed in stage one CRPS since 2007, unless certain aspects can advance while others remain the same.

I have an appointment at Penn in February and soon after at Drexel.

Kratom has helped me with pain and it seems at times, concentration and focus but can any strains help for memory I wonder?

This is what I found regarding cognitive function and kratom:
Nootropic (Cognition Enhancing) Effects
Nootropic substances are a relatively new field of interest, yet it shows much promise. Interestingly, due to strain differences, it has been used as a nootropic in several different areas, such as focus and memory.

Unlike traditional medications for focus, kratom doesn’t make your focus “stick” psychologically, rather it dampens psychological background noise, promoting natural focus ability.

Because strain differences can vary, there is typically no set dose for peak cognition boosting effects — though it typically ranges from low/medium to medium.

nootropicStrains
Green Malaysian (Focus)
Thai (Focus/Energy)
Maeng Da (Focus/Energy)

Thanks for listening.

Added this info:

CRPS/RSD is a chronic neuro-inflammatory disorder. It is classified as a rare disorder by the United States Food and Drug Administration. However, up to 200,000 individuals experience this condition in the United States, alone, in any given year.

CRPS occurs when the nervous system and the immune system malfunction as they respond to tissue damage from trauma. The nerves misfire, sending constant pain signals to the brain. The level of pain is measured as one of the most severe on the McGill University Pain Scale.

CRPS generally follows a musculoskeletal injury, a nerve injury, surgery or immobilization.

The persistent pain and disability associated with CRPS/RSD require coordinated, interdisciplinary, patient-centered care to achieve pain reduction/cessation and better function.

It has been shown that early diagnosis is generally the key to better outcomes. However diagnosing CRPS/RSD is not a simple matter and many patients search for months or years for a definitive diagnosis.

It is important to know that research has proven that CRPS/RSD is a physical disorder. Unfortunately, it has not been unusual for medical professionals to suggest that people with CRPS/RSD exaggerate their pain for psychological reasons. Trust your body and continue to seek a diagnosis. If it’s CRPS/RSD, the pain is not in your mind!

The pain is typically accompanied by swelling, skin changes, extreme sensitivity, and can often be debilitating. It usually affects one or more of the four limbs but can occur in any part of the body and in over 70% of the victims it spreads to additional areas.

CRPS can cause Depression
, NOT the other way around.

CRPS causes insomnia by not allowing the body to drift into REM, or rapid eye movement, sleep. This is the sleep that allows the body to use its own healing abilities. Without it, the patient's pain cycle continues and becomes more entrenched. As the body cannot heal itself, it becomes harder to achieve that sleep, which makes the pain worse and so the cycle continues. Many patients can feel they are losing their mind as their ability to remember things, short-term, greatly decreases. Things like: what someone told you an hour ago, what you had for lunch yesterday, whether you took your pills this morning, what you were just talking about, etc., are quickly forgotten. You are NOT losing your mind. Loss of short-term memory is part and parcel of CRPS. Other signs of problems here would include the inability to think of, um, well, ah, hmm, just the right word. The patient's ability to concentrate is also lessened while their level of irritability is increased. These problems get even worse as the sleep cycle continues to worsen, weeks and months on end building a sleep deficit you cannot seem to recover from.

Do these symptoms sound familiar to you? Do you also sometimes have an increase in your pain when your stress level is higher? Or the noise level is higher? Do you want to crawl into a hole by yourself and pull it in after you? Does the simple rustling of a newspaper or the soft touch of your spouse send you through the ceiling in pain? Do you sometimes have trouble finding a certain word? Do you sometimes completely lose track of what you are saying? If these symptoms sound familiar, know this; you are NOT crazy and you are NOT losing your mind. You are also not alone, not anymore.

FOUR Main Symptoms/Criteria for a diagnosis of CRPS:

Chronic burning pain - includes allodynia; extreme sensitivity to touch, sound, vibration, wind, and temperature.
Inflammation - this can affect the appearance of the skin; bruising, mottling, shiny appearance, blotchy or pale appearance, and tiny red dots are some examples.
Spasms - in blood vessels and muscles of the extremities, called vasoconstriction,
Insomnia/Emotional Disturbance - (including limbic system changes such as short-term memory problems, concentration difficulties, and irritability).

www.rsdhope.org/what-is-crps.html

I do take Fish Oil and some other supplements. It gets expensive regarding supplements and so on, and I often just have to rely on diet alone.
Last Edit: 1 year 8 months ago by guitarguy.
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7149

  • MelVSox
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I am so sorry for whats happening to you..

I apologize for such a probably dumb question. but what is CRPS...? Can you explain it a little bit for me..?

Thanks in advance! I hope you can find something that will help you out.. kratom is such a wonderful plant! <3
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7152

  • kemppaulh
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I have never seen anything about kratom improving people's memory in all the studies I've read. Kratom can help focus, which could help in the memory-making process, but I don't believe it's the whole answer.
I will tell you what I would do.
I would find the best Naturopathic Doctor, who understands our need for a healthy diet and nutritional supplements to build, maintain, and repair our body. Most MDs know nothing about our body's needs, They have no clue WHY this is happening, so how can they cure anything so complex?

I would also suspect that your taking of a lot of pain meds might have something to do with this, so I would attempt to stay off them. They may be destroying your memory.

I would do a thorough cleanup of my diet, you can get a list of common foods that make it impossible to absorb all the nutrients that are in your food.

One good Naturopath is Dr. Peter Glidden, in Chicago, who has a daily(I think) radio call-in show. I would try to get his prescription for your condition. He has 27 yrs of clinical experience -- I subscribe to his service for $25 a month. The radio shows are free. He will also give you a list of the Good Foods and Bad Foods if you sign up for his newsletter. You can find him at www.glidden.healthcare/

That's what I do and I have no serious health problems at age 67. My serious lower back pain and sciatica were healed by the supplements Dr. Glidden recommends, after 40 yrs of wasting money on Chiropractors.

Naturopaths have so much more knowledge than Medical Doctors and the key is complete nutrition, or else our body breaks down in many different ways. Our body also knows how to fix itself, if it is given the appropriate raw materials.

I hope you'll use this Guitarguy. Your doctors have let you down.
;)
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7158

  • gmantheman
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Kemppaul made some excellent points. Some supplements are supposed to help with cognition including memory and focus. One of the most basic is fish oil. Don't get the cheapest brand. Look for one that is higher in DHA than EPA. DHA helps with memory. Another well studied supplement is called Bacopa Monnieri. Here is a link to a bacopa monnieri study: examine.com/supplements/bacopa-monnieri/ Other supps are racetams e.g., piracetam or aniracetam. These supps do take a few days to a few weeks to notice any effects.
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7166

  • guitarguy
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Thanks all, I added some info on CRPS/RSD to my first post. I also added Kratom info on memory, etc.
I had a conversation with my wife tonight and it was good, she is really starting to better understand what is happening to me and that it is not my fault, and I am not crazy. I also pointed to the low scores I had on several cognition tests, and nerve conduction/speed tests this past year. All showed consistently with CRPS advancement. It helped for her to remember my poor test results on cognitive function, memory and nerve conduction at the hospital that the doctors attribute to CRPS, not something I am doing purposefully or through laziness.

I do take fish oil and I try to stick with the right brands. I have a lot of nutrition books and many that speak about brands, etc. I agree on that subject. Unfortunately supplements get expensive.
I need to make sure I can stay focused enough to keep working as long as possible or I won't be able to afford any supplements.

I agree regarding doctors and I am in the process of starting to make changes in that respect.

When I started on this journey in 2007, doctors had no idea what this was, the best they could come up with was lyme disease and in that period, I spent a lot of money on naturopathic doctors until I couldn't afford it any longer.
I am trying to find one now who takes health insurance.
Unfortunately, unless covered by insurance, we can't really afford to be paying out of pocket.

Pain meds - I take Nucynta and Cymbalta. It is much cheaper than Kratom in our case, due to my insurance covers the meds. I only really take the one pain med now, the Nucynta. I tried going without, a few times, and I could hardly function. I also tried to go 100% natural with Kratom but it got too expensive so now I am trying a compromise, taking both, but less of each.

Diet is one thing I take seriously. I am a huge believer in proper diet, and the body's ability to heal itself. When I was a personal trainer, I studied to become a nutritionist and still have a library of books on human nutrition. It has been a passion of mine. However, appetite has been an issue, Pain alone can kill my appetite. Another tough part about nutrition is that CRPS can cause some terrible dental issues were at times all I can do is drink smoothies.
There are foods I call anti nutrient foods.

If you only knew what I did for years when this issue started, while seeing some local and very expensive naturopaths. I ate the most perfect diet, was in incredible shape, I mean my diet was crazy good - but still the pain continued as did te other symptoms. Up until that point in my life, I felt incredibly healthy, exercised, ate like a champ and felt like I would live well past 100 in good health. I extensively studied longevity, exercise and nutrition. At the time I also did a few elimination diets, you name it. I finally gave in and started taking pain medicine because I wanted my life back.

This is what I found regarding cognitive function and kratom:

Nootropic (Cognition Enhancing) Effects
Nootropic substances are a relatively new field of interest, yet it shows much promise. Interestingly, due to strain differences, it has been used as a nootropic in several different areas, such as focus and memory.

Unlike traditional medications for focus, kratom doesn’t make your focus “stick” psychologically, rather it dampens psychological background noise, promoting natural focus ability.

Because strain differences can vary, there is typically no set dose for peak cognition boosting effects — though it typically ranges from low/medium to medium.

nootropicStrains
Green Malaysian (Focus)
Thai (Focus/Energy)
Maeng Da (Focus/Energy)
Last Edit: 1 year 8 months ago by guitarguy.
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7175

  • lerellen
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There have been many excellent suggestions here; I have a few more thoughts. Severe pain definitley has an an effect on short term memory;I know this from experience and research bears it out.Also,you seem to me to be severely depressed which can cause problems with memory and cognition.Again, I've experienced this and had it treated successfully. With regard to nutrition, are you familiar with the Nutribullet? It liquifies fresh fruits and veg and makes an extremely nutritious shake. I swear by it. You'll be amazed;even green shakes taste good, and they send a lot of recipes.


Your doctor is unable or unwilling to provide the care you need. IT'S SCARY to make that change in your situation but you must, I think. You need the best, not someone who is barely adequate, .optimally you would benefit from a team approach with several professionals addressing your issues.You're going to have to insist on better care. It's ok to get mad about this, it well help you be assertive. And wake your wife up to reality. You DESERVE good treatment and you should DEMAND it! No more Mr.nice guy. Part of your depression may stem from the helplessness you feel. Call us, some of us have decided to be outlaws if need be an

d we will ride into town and save the day! Laura
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7220

  • KC77
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Oh, guitarguy,

This is so sad. Sorry your wife is treating you that way and that you have CRPS. Seems some people in today's time do not understand that love, true love, is unselfish.

To this I want to add, have you tried a type of magnesium called Magtein? It's magnesium L-threonate and is being studied now. It crosses the blood-brain barrier and is proven to do so. They might be doing Alzheimer's research on it, plus I knew they were talking about doing research for other kinds of dementia and then PTSD.

magtein.com/

At present I do not know yet what their studies have revealed. I'm behind on this. I take Jigsaw Health Magnesium w/SRT and have for years. It's not the mg L-threonate, the Magtein. Magnesium helps with our blood vessels, keeps them relaxed and helps with spasms. I'm sure it won't cure your CRPS, but sounds like it might help you. If you get a chance, research Magtein. I know there are brands of the magnesium L-threonate. I would research it.

I thought that I had problems until I read your post. I sure hope that you can get some help.
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7336

  • guitarguy
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Thanks for the thoughts and info.
You are all like my brothers and sisters and I thank you.

My wife has really been coming around and our communication is better as is her caring and wanting help and forgive me a bit more.

I use magnesium all the time and will try this type.

I am going to start a new post about mixing opiates and kratom. I have had a bad experience.

I finally found a local RSD CRPS expert but there is a waiting list. It looks like February at the earliest. If I make it till then. :(

Rich
Last Edit: 1 year 8 months ago by guitarguy.
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7363

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My left arm and hand are completely swollen and purple today.

I almost passed out today in a museum with my family.
Feels like molten lava flowing through my left arm.

I took 3x my dose of nucynts and 12 grams of kratom and I am thinking of going to the hospital. Maybe they can give me a shot for pain.

www.menshealth.com/health/complex-regional-pain-syndrome
Last Edit: 1 year 8 months ago by guitarguy.
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CRPS slowly taking my life, can Kratom help with memory? 1 year 8 months ago #7371

  • KC77
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Hi, Rich,

I hope for the best for you, and I'm so glad that your wife is coming around. She will be of so much help and support if she will do it. That Magtein, the magnesium l-threonate, I've tried the kind by Source Naturals, I think it was, then the kind by Doctor's Best. I thought Doctor's Best was better than the other, but everyone is different. Then maybe you can try even a better one. If it helps you and your condition, I would surely report it to them because there are medical studies going on now. I want my son-in-law to try it because he suffers from PTSD. It's being studied for that, too.

Regardless, please let us know how it all goes for you. My heart goes out to you and your family because I know you're suffering.

KC
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