07 Feb 2019
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TOPIC: My mom has dementia but with an asterisk

My mom has dementia but with an asterisk 1 month 1 week ago #44490

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Laurie wrote: EDIT 2: Bad news: I got a fountain Dr Pepper! I think my second one in a year now. Effing delicious!


Whaddya mean bad news. They mainline Dr. Pepper and Mt Dew here in Georgia. :lol:

I don't drink either of them. Just ginger ale occasionally.

When we first moved to GA 25 years ago Liz asked for a coke. The person said what kind. Liz was at a loss because there weren't all the kinds they have now.

But the person wasn't actually asking the kind of coke but what kind of soda she wanted. At that time coke just meant soda down here. :lol:
My Grandkids say I’m a cuckoo head. ;)
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My mom has dementia but with an asterisk 1 month 1 week ago #44493

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No Orange, no grape , no coke. Pepsi!



We did this today at work too busy ran out of eggs then all the chicken steaks sold out. Lunch was No Chicken, Beef! all day.
Restaurant humor
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My mom has dementia but with an asterisk 1 month 1 week ago #44495

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Update-

Last night my father gave me a short discouraging text.

Worried ur mom is not going to get better

This morning my sister was checking out memory care facilities, Plan b if she is not able to go home. It she cannot regain ability to walk or stand on her own my parents house can no way be equipped for a wheelchair. Its a large split level with no open concept, most floor surfaces are rugs and the bathrooms cannot be accessed with a wheelchair. I reiterated that her last back X-ray be reviewed and an orthopedic doctor get in to see her to check her knee and ankle reflexes(look for nerve compression issues), They need to rule out orthopedic conditions of her lower back causing walking problems. Don and Liz know all too well when a doctor misses something. My mom's mother had non cancerous spinal tumors around this age mostly from smoking.
If mom stabilizes mentally on the medication she still cannot return home with untreated back conditions. Psychomotor retardation or actual back problems? My concern is lack of attention to preexisting stenosis, she had 2 falls recently a recent back X-ray revealed a fracture in her spine. Can anyone say untreated lower back arthritis!?

Something positive- my sister was in to see her today. She is calming down mentally. The goal is still to stabilize, get mom to take direction and start physical therapy. Not yet but she is calming down.
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My mom has dementia but with an asterisk 4 weeks 2 days ago #44656

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Hey Nan, :-h
How are things with you and the family going?
I don't see any recent posts from you. I imagine you are very busy, as everybody always is.:ohmy:
I haven't been posting much. Just reading the posts as I have time.
I pray your mom has calmed down now and is stable enough to do physical therapy.
I also pray for her and your dad's mental health as well as yours and your sisters. I can only imagine the stress you are all feeling during this.

Try to find peace as you are able.
Liz and I send our love and hugs to hopefully cheer you up. >:D :x >:D :x
Don :cheer:
My Grandkids say I’m a cuckoo head. ;)
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My mom has dementia but with an asterisk 4 weeks 2 days ago #44659

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I’ve also been praying for y’all and missing your posts but fully support posting is for when time and energy allow. Praying that Mom is improving and Dad is feeling better support for all of his efforts despite the challenges. Sending hugs to everyone <3

What Don said!
Laurie
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My mom has dementia but with an asterisk 4 weeks 2 days ago #44667

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I agree with it all!

nan you are in our well wishes. I bet even tink askes about you! giving you strength when you need it most..we send our love!
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My mom has dementia but with an asterisk 4 weeks 1 day ago #44673

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Hi everybody,
Fatigue do to stress over my mom and dad, change of seasons, menopause, and work has gotten the better of me. Its just a big bundle of bleh.
My mom who has been given a cocktail of different medicines was getting pressure from medicare about not enough progress. These guidelines do not match the time it takes for anti depressants to take effect, this is our health care system. But she is still there and the turn around has finally started mentally. She allowed the PT to work with her today unfortunately she was unable to stand.
She will probably need to be moved to a long term rehab center but I hope not too soon she still needs the supervision for her mental medications. I would hate to see any back tracking because of the pressure to move her off to a different treatment.
My Dad wants the goal of getting her home, she needs to be able to walk. This leaves me conflicted I do not want her back at that house or my father its too much for them even in better situations. But I guess if my dad doesn't want to leave the house I have to get past this.
I am also suffering from feeling empty nested even though I have been empty nested for awhile. My youngest took a job that will have her touring all over the country and realizing she wont be popping by has hit me hard.:(
Thank you guys for checking in on me. Some of the news is a bit better.

Did a see a post from Robie!!!! :x
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My mom has dementia but with an asterisk 4 weeks 1 day ago #44681

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Prayers and hugs are continuous and loved hear from you, Nan70!

It certainly is a trying time! <hugs>
Laurie
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My mom has dementia but with an asterisk 3 weeks 4 days ago #44792

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nan,

you are going through a trying time all around! please just make sure you take care of you.. ok? and your husband too of course. but like mine.. he is a grown ass man that is perfectly capable of taking care of himself. we always worry about everyone else. im not saying don't. I know you wont listen lol. but things will be worse if you don't take care of you.

im happy for your 'baby' oh to be young and get paid to travel! I hope she loves it. I found out young I get motion sickness so it would usually be a nightmare!

im glad you have some positive news. sometimes you just gotta let things be. don't get too worked up. now im gonna listen to my own advice and go to bed! lol.. love to u all..( hugs ! )
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My mom has dementia but with an asterisk 3 weeks 1 day ago #44886

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Well .....my mother has been discharged back to assisted living.

She is using a wheelchair but can transfer independently.Toileting is still an issue BUT...we are hoping for the bst.

I am not hopeful for the success of this as she has been very confused and disoriented around this move which is not like her. She is still a VERY HIGH fall risk so we just accept that it will probably happen and we have done as much as we can to try and keep her safe.

Cleaned her suit (well actually I hired someone) and reorganized furniture on Sunday.

Then spent most of Monday packing things at her place and trying to deal with her anxiety and confusion.

Then we moved most of her stuff back today.

This has been physically difficult for me and pain levels have shot up through the roof. Just a lot of standing around, running around to pharmacies and stores, and getting things done. I am still not finished at her place as we cannot get the TV connected.

Hoping for a better day tomorrow but we have arranged for safety checks for her for a few weeks so at least if something does go wrong they will know about it pretty quick.

Sometimes I wonder Who needs the most help....her or me! Thankfully I do have a husband who is significantly more able-bodied than I am, so getting Mother, walker, wheelchair and the TV in and out of our small car was his job!

AND now we are on to the next adventure! I have requested an additional assessment as I think she will require a higher level of care very soon.

I need a few days off! but that is the update for her at least. She fell in July and broke her ankle so it has been a long haul to get her back home.

Really nice to see a bit of positive news from Nan70. It is a lengthy journey, but even more difficult when you are an elderly person yourself!
BEV

#humboldtstrong
#torontostrong
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